Wednesday
Feb. 20
Update: Thursday AM
This is not my
idea of what Arizona is supposed to be.
We had to go to Benson for
a 2 PM Dr. appointment. You would know about noon it started snowing blizzard
like. White out... The interstate was nut much fun driving 45 mph. On our
way back at about 3:30 PM it had stopped but at 4 PM it started again so
will see how much we get tonight.
This is fun watching since
we are home but not driving it. Brings back memories of a former
life of winters in Iowa.
Now if I could just sleep
in tomorrow on Thursday but I have a another Dr. visit scheduled for 8:15
AM in Benson.
Does life exist at that
time of day? And that is just the begining... Will be scheduling
appoints for Nephrology, Castroenterology (time from my 5 year colonosocpy)
and a possible Endocrinologist. As you can see I have some conditions that
need to be investigated.
More pics form last night
and this morning.
It felt just like being back
in Iowa getting up and having to be in town at 8 AM for a Dr. appointment.
Pics below from
yesterday...
Monday
Feb. 18
Some days just
don't work the way you planned...
I had
a scheduled hospital follow up my cardiologist Dr. appointment today for
11 AM with Tucson Pima Heart. They are located in north Tucson so not an
easy commute to get there. About 1 hr 20 min drive from our place
near Benson, AZ.
So
we get there and get our dually wide rear end truck parked into one of
those Oh so small parking spaces after the back and forth backing to get
the pick-up placed just so. I get inside and stand inline for check-in.
Pima Hearth is a big deal with many Drs. so this time the check in line
was several people deep. So afere waiting several minutes I check in and
she tells me my Dr. is not there today. I say TMC hospital made the
appointment as I look forlorn at her. She confers with others and
came back saying the Dr. is at their satellite office location today.
BENSON AZ. I said I was from Benson.... Told her I was
told to go to the Tucson office as the hospital TMC that made the
appointment as I had asked since I knew he did go to Benson on Thursdays.
So
I'm in Tucson and my Dr. is 40 miles east where I started out.
I
didn't get upset as after what I had been through this was a non event.
So
they set me up with 8:15 AM for this Thursday at their Benson
office so I can get together with the Dr. for my follow up.
I'm
retired so 8:15 AM is not a concept I am familiar with... It will
be OK as Benson is only 7 miles away from our place so can do that. May
have some stubble on my cheeks but who cares, he is looking at my heart
not my face.
But
with what I have been through (two hospital stays) guess I'll get up and
make the best of it.
BTW
feeling better...
I think
they solved my onset of A-fullter which is different from my long history
of A-fib.
After
was released from the TMC hospital on Thursday. I did on Friday
night at about 9 PM go into A-Fib, took my meds and came back to normal
soon later. (three hours) Now seem to be back to where I was before
in years past. A-fib is manageable and under control. What they fixed
at the TMC in Tucson with the Ablation was out of control heart Flutter
99% success rate to fix Fullter. Which is different from A-Fib.
They
said it might correct both but it didn't... such is life.
So
I still have A-fib which I hope can be managed with drugs like I have been
taking as needed in the past.
Or
if it gets worse can with 70% success rate with a much more complicated
Ablation procedure for A-fib.
If
I only get a A-fib event once a month or less I can deal with that. As
it is not as they say life tthreatening.
Now
with both these coinditions the worry is a blood clot going to the brain
which can cause a stroke. So a blood thinner is needed so this does not
happen. I take 20 mg Xarelto once a day with food.
I
am on Medicare and have a secondary plan (UnitedHealthCare) with my former
employer (retired from) my monthy premium for that plan is $128.
It mostly covers the above 80% Medicare pays. Still have co-pays
etc. So I have to pay $75 for 90 days for Xarelto. The secondary
plan pays (I just looked it up) $625 for the 90 days of Xarelto.
So this will give some info to compare on what you find your plan pays.
But
all this is silly stuff and Feeling like a happy camper again....
Thursday
Feb. 14
Sent
to the Tucson Medical Certer. A good move for me.
My
new cardiologist at Pima Heart in Tucson saw me on Tuesday and right away
sent me to the Tucson Medical Center hospital.
By
the time we got there my room ws ready. They have about1200 beds
at this center... not that many for cardiac care but still all those beds
are on one ground floor. They use gulf carts etc. and transportation teams
to push beds of patients around from their rooms to surgery, cath labs.
etc. See
a map of this huge hospital.
This was the view from me
laying on my back in the hospital bed.
The IV drip controller one
the left and heart monitor on the right. (This monitor pic shows my numbers
doing good at that point in time) After awhile my RN allowed me to reach
up and punch out the orange button (lower left) to silence the heart monitor
beeping alarm as they were also monitoring it from the main nurses desk.
As with A-Fib and A-flutter the monitor will go nuts so not much can be
done at the time. Did you know A-Fib and A-Fultter is not the same?
My
primary hospital RN had 5 patients assigned to her. I did receive very
good care. Every contact with a staff member was above expectations. Also
you know laying in that bed that you are at last getting the care you have
been in need of for some time....
and
whatever the outcome is, you now have skin in the game... so blow the whistle
and move the ball forward. Good or bad no stopping now. That takes
the pressure off as you now are in trusted hands. That's mind relaxing.
While also watching and questioning everything they do, if you don't fully
understrand or agree, so mistakes are not made, as you are a part of this
in partnering with the health care professionals. Health care people
respect this, and apericiate that you are working with them for the expected
outcome. If you are a noncooperative patient, how could you expect them
to care. Please and Thank You and remembering their names goes a LONG way
in a hospital setting. Take that to the health-care-bank.
I
learned more about what the meds I have been taking and my blood tests
than I ever knew.
A
informed patient is better able to help in the decisions. Information is
power... this is your life... can't have too much knowledge.
You
don't know what to ask... Google on the internet and write down the results.
Or just ask the DR. or RN what questions you should ask. Saying
that you don't know what to ask, will get you more informatiom...
Ask
your Dr. an intelligent question and see his eyes light up knowing he is
dealing with a person who is involved in their care.
Now he can jump in maybe in higher level and feel needed, unlike how he
my have interacted with a blank uniformed person. Now you might get better
care if you are able to be active in the process. At least try to sit up
if you can and give your Dr. eye contact to show you care about your outcome.
NOW
OK off my bed pan... soap box... It's getting slippery as my foot got wet
as I kind of missed.
Anybody
got a towel for the floor as someone may slip on some special so called
water next to my bed in the hospital room. Someitmes we just have
to accept we are human... would a bird do that. I missed the pissing
contest bottle... just a little bit...did I say that.
Now
what they did for me....
Tucson
Medical Center Tucson Medical Center – a recognized Atrial Fibrillation
Center of Excellence has great cardiac electrophysiolgists and performed
a invasive procedure which may provide me long-term successful treatment,
and stop additional medications.
I
had a invasive procedure called Radiofrequency Catheter Ablation
which electronically burns and destroys some abnormal conduction pathways
in the atria. Tucson Medical Center is the first hospital in Arizona to
be awarded Atrial Fibrillation Certification by the Society of Chest Pain
Centers. The only place in all of AZ to provide this even today.
The
abnormal pathways are located, via a catheter insertred in the groin and
up to the heart. Much like a coronary angiography but this used a vien
and not the artary.
After
proper placement, the catheter delivers radiofrequency energy that interrupts
(ablates) a portion of the abnormal electrical conduction pathway. This
ablation inactivates the abnormal pathway to provide the normal flow of
electrical impulses.
This
technique is safe. When it works, atrial flutter may be permanently
cured. Radiofrequency catheter ablation has few complications and, unlike
surgery, requires little recovery time.
I
felt like the cat lab was something out of a science fiction movie.
And I was the one being sent off into space via transporter.
It
WORKED so as it stopped my flutter and I hope also will stop my A-Fib events
in the future. We shall see. But for now I am feeling better with much
more energy. What more can one could ask for . I was released from
TMC and am now home at our winter location doing this blog. I have appointments
for next week for follow ups.. Modern medicine has done well by me...
Now
I know there is a big difrence from A-Fib and A-flutter. Two diferent things
. Now if you don't have one or the other don't worry. Otherwise Google
is standing by for you.
I'm strating to collect these hospital
arm bands.
Anyway we are doing well
and both happy to be at our winter home with each other.
It's one of the reasons
we bought this place.
Things are looking up with
the last lab results from the them better.
More Dr. appointments next
week and will go from there... looking forward to warmer weather and life
just getting better and better.
Now doing great and planning
to have a good nights sleep in my home bed...
Ya All Take Care Out There....
Tuesday
will be a big day for us.
I'm
still having heart sync problems. A-Fib and flutter. Used to happen
less than once a month... now... every day. Blood sugar has gone
real high with this new heart situation. There has to be an underlying
cause why my system is reacting this way.
We
are taking readings ... BP, Pulse, Blood Suger several times a day and
putting it all on a spreadsheet. I helps to be able to look at the
readings over several days. At least I hope so. I have been in A-Fid and
Flutter several times over the last few days after released from the hospital
last Thursday. With a time recording of my situation readings can only
help my new caddiologist...
So
have appointment with cardiologist tomorrow at Pima Heart.
Hope
my Dr. has some ideas. Just hanging in there and hoping for the best.
What
can I say... it is what it is.
This
is clearly a life changing event.... And I am looking for a good outcome.
Friday
Feb. 8
We made it back
to Benson from Quartzsite.
Our last campfire in Q. Most
everything was packed up.
Our
key to the lock on the front gate worked this time, so we felt good about
that and glad to back at the winter property.
Now
to get the 5 th wheel unloaded and all the stuff into the house. To say
the least Terry is doing most all of that. as I'm just not feeling all
that good. I had a good Wednesday night but Thursday (last night) didn't
work out so well as woke up in A fib again. Took most of the night to get
back in sync and this AM my BP was very low. 70/45 pulse 50. Had a hard
time holding my head up. I got stronger as the day went by, but right now
at 7 PM my pulse is back up again to about 130 after shower. I hope it
goes down on it's own.
I
have appointment for Tuesday with a cardiologist in Tucson on Tuesday so
hope I can hold on till then,
without
having to go to the ER.
NOW
would you people up north get your act together. Please open your windows
and get some heat going so it warms up down here in southeast Arizona.
We were just getting some 70 like temps in western AZ in Quartzsite but
now in Benson the weekend looks like a mess of cold and snow. Yes temps
in the upper 40s for the high and snow during the day on Saturday. 1 -
2 inches for us. Lows in the 20s. It's just not acceptable for it
to be this cold in AZ.
Have
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